20250612 - these were agreed.
Generally very good!
Doesn't seem to be an evacuation plan for wheelchair users in European locations!
Feedback is still being compiled - form went out last week. But:
How can we attract applied researchers?
Can we get affiliation with a journal (e.g. for publishing abstracts)? Not sure how that works in reality... International Data Linkage for Population Health conference is an example.
Maybe do a satellite event at a large epidemiological conference and/or match locations so people can participate in both. Could be done alongside HDRUK or AIUK
Maybe have a special call for use cases of DataSHIELD. But what are people who using DataSHIELD going to gain from the conference? What about an online seminar series.
Important to have feedback loop from users to developers - e.g. how to improve functions!
NCC Netherlands Cohort Consortium, funded for 10 years and just starting now. Could consider them in the future. Florian's giving a keynote speech at their first symposium. Morris is part of the consortium.
Paula has been doing research into space near Liverpool. Not much available as everything university is used for teaching!
Assuming that if it's just DataSHIELD, don't need space for more than 100. If we're colocated with another meeting...
Feedback from clinical (NHS) researchers is that it's very difficult to have time out to come to even a 2 day long meeting.
There's going to be a community manager funded through Liverpool, so webinar program bringing people together. Was initially envisaged to be 3-monthly. Free - but ticketed in EventBrite so as to keep track of utility.
Will shortly have someone who can help coordinate but they will be a communications expert, not a domain expert. So will rely on knowledge from people
UK OHDSI conference is always the same week as DataSHIELD (coincidentally)! They ticket and cap it at 100-150, but are sponsored by HDR-UK. Started as 1-day meeting then recently has expanded to 2-day meeting. They are currently busy as applying for a grant call on the 5th November.
NHS SDE network meeting is 1-day. Could approach them to ask if they want to have a co-conference.
Paula has scouted some locations already, but hard to decide/know without knowing dates.
Not too early in September. Not too late (i.e. November) as weather gets bad.
Need to be aware of
Agreed first few weeks of October is probably the best time.
The AB met a few weeks ago. They want to work on some documents to support the community so they've started looking at the wiki and identified some areas where info is lacking, e.g. gaps in the 'getting started' section, e.g. around international aspects of the community.
They have another meeting in December, and hope to be allocating topics to people to look at then.
We did not do full reports as people had just reported back at Conference.
We discussed some relevant issues though...
Roberto Villegas-Diaz wants to become a member. His sponsor needs to contact someone who doesn't work with Roberto to review the application.
This developed into a more generic conversation about how to organise the forum - is it set up in the correct/best way? That is, do we need subsection for each Theme, or do we need a general box for the whole community?
Discussed that possible (top-level) categories could be:
Working party is being created to consider the (community) website. Need to figure out with Becca what her plans are regarding the domain name/current website hosting etc. Can the current domain (datashield.org) be used for the community, or is this going to be kept for use by her research group? Becca had already left so Paula said she would ask her and send around a response to members of the SC.
There's a call out for developing a new community logo. Dale and Mariska have both been working on ideas so far.
Does it need to be trademarked - i.e. to prevent copyright infringement (and so as not to copy other's logos)?